Patient-Reported Outcome Study of Project ECHO for ILD

Project ECHO (Extension for Community Healthcare Outcomes) is a knowledge-sharing model to expand the capacity of the health care workforce so that more people can get high quality care for their health conditions in or near the communities where they live. The ECHO model addresses barriers of long wait times for a first appointment, the time and expense associated with long distance travel, and the disinclination to follow through on repeated care appointments in the face of these persistent barriers, all with the additional objective of achieving health equity. Most patients perceive the diagnostic and care pathways in ILDs as a major struggle because of lack of awareness about the diseases, delayed access to specialty centers, providers' focus on disease- versus patient-centered care, and lack of reliable information and education about the diseases and supportive care resources. 

  • Study Sponsor: Pulmonary Care and Research Collaborative Limited

  • Start Date: July 2022

  • Estimated Primary Completion Date: December 2023

  • Observational

Inclusion Criteria:

  • Confirmed diagnosis of interstitial lung disease
  • Not be currently followed by an ILD specialist at an academic institution or must live more than 50 miles away from an academic ILD center