Boston PF Support Group

The Boston Pulmonary Fibrosis Support Group provides patients and caregivers living with pulmonary fibrosis of any kind a place to learn about how to live with this disease, and to teach others what has worked for them. Each month we have a speaker on a topic relevant to pulmonary fibrosis, with our goal being to provide information about important medical issues, as well as issues shaping patients’ quality of life. The remainder of the meeting is a time to connect with, and ask questions of, others living with this disease. 

As of April 2018, our group will meet on the first Thursday of every month from 1:00pm to 2:30pm. 

The meetings take place in the Conference Room Cox 201, on the 2nd floow of the "Cox Building" of Massachusetts General Hospital.
  • Entrance: Parkman Street 
  • Parking Garage: Fruit Street or Prakman Street Garages
  • Nearest Valet Parking: Wang Center
Oxygen is available on site.

Advanced registration is helpful so that we can have adequate refreshments available, but please feel welcome to arrive unannounced.

 

SCHEDULE  

5/3/2018     1:00pm – 2:30pm
Home Oxygen: Making Choices and Easing Challenges
Karla Schlichtmann, RRT 

4/5/2018     1:00pm – 2:30pm
Open Conversation with Suppport Group Members: Daily Life with Pulmonary Fibrosis 
Aliaa Barakat, PhD, Katharine Black, MD, Anne Lafleur, LICSW

3/1/2018     12:00pm – 1:30pm
Pulmonary Rehabilitation for ILD
Jesscia Garton, PT

2/1/2018     12:00pm – 1:30pm
Nutrition Concerns and Guidance
Jessica Witchey, RD, LDN 

1/4/2018     12:00pm – 1:30pm
Open Conversation with Suppport Group Members
Aliaa Barakat, PhD, Katharine Black, MD, Anne Lafleur, LICSW 

12/7/2017     12:00pm – 1:30pm
New Discoveries and Advocacy:
Update from the PFF Summit
Katharine Black, MD

10/5/2017     12:00pm – 1:30pm
Update on Pulmonary Fibrosis Clinical Trials 
Katharine Black, MD

9/7/2017     12:00pm – 1:30pm
Group Discussion
Patient and Caregiver Panel

8/3/2017     12:00pm – 1:30pm
Non-Medical Challenges
Patient and Caregiver Panel

6/1/2017     12:00pm – 1:30pm
Living with IPF: Family and Community 
Caregiver Panel

5/4/2017     12:00pm – 1:30pm
Newly Diagnosed: The Patient Experience
Patient Panel

4/6/2017     12:00pm – 1:30pm
Oxygen at Home and Away
Nancy Davis, RT

3/2/2017     12:00pm – 1:30pm
Pulmonary Rehabilitation for ILD
Jessica Garton, PT

2/2/2017     12:00pm – 1:30pm
Open Conversation with Suppport Group Members
Katharine Black, MD, Anne Lafleur, LICSW

1/5/2017     12:00pm – 1:30pm
Insurance and Financial Issues
Kristy Farrell-Sampson, Transplant Financial Coordinator

12/1/2016     11:00am – 12:30pm
Open Conversation with Suppport Group Members
Aliaa Barakat, PhD, Anne Lafleur, LICSW

11/3/2016     12:00pm – 1:30pm
Benefits/Science of Exercise 
Katharine Black, MD

10/6/2016     12:00pm – 1:30pm
Relaxation and Stress Reduction
Sara Fisher, RN

9/1/2016     12:00pm – 1:30pm
Care of Caregivers
Anne Lafleur, LICSW

8/4/2016     12:00pm – 1:30pm
Palliative Care
April Zehm, MD, and Juliet Jacobsen, MD

7/7/2016     12:00pm – 1:30pm
Open Conversation with Suppport Group Members
Aliaa Barakat, PhD, Katharine Black, MD, Anne Lafleur, LICSW

6/2/2016     12:00pm – 1:30pm
New Directions for IPF Treatments: Updates on Clinical Trials
Sydney Montesi, MD

5/5/2016     12:00pm – 1:30pm
Pulmonary Function Testing
Katharine Black, MD

4/7/2016     12:00pm – 1:30pm
Pulmonary Rehabilitation and Other Exercise
Jessica Garton, PT

3/3/2016     12:00pm – 1:30pm
Oxygen at Home and Away
Nancy Davis, RT; Tom Brown

1/26/2016     4:30pm – 6:00pm
Insurance and Financial Issues
Kristy Farrell-Sampson, Transplant Financial Coordinator

12/22/2015     4:30pm – 6:00pm
Introduction to Medications for Pulmonay Fibrosis
Robert Hallowell, MD

11/23/2015     4:30pm – 6:00pm
Nutrition Concerns and Guidance
Jessica Witchey, RD, LDN

10/27/2015      4:30pm – 6:00pm
Medical Complications of Pulmonary Fibrosis
Katharine Black, MD