Pulmonary Care and Research Collaborative Patient Registry
The registry will contain longitudinal medical histories of ILD patients. The creation and curation of the registry with utilize release of information services, biomedical informatics methods and human expert reviews. Among the registry's long-term goals is to utilize its data and informatics resources to study and advance ILD diagnosis and treatment. The registry will be developed with a set of capabilities to consistently, repeatedly, and economically build research-grade datasets that allow cohort development from natively unstructured and non-standard phenotypic clinical and imaging data.
- Study Sponsor: Pulmonary Care and Research Collaborative Limited
- Start Date: July 2022
- Estimated Primary Completion Date: December 2023
- Observational registry of people with interstitial lung disease (ILD) to advance ILD and pulmonary research and improve patient care
- People with a confirmed diagnosis of interstitial lung disease by a primary care physician and/or pulmonologist.