The ILD Collaborative currently runs a monthly face-to-face support group for pulmonary fibrosis patients in the Boston area. Our support group provides patients and caregivers living with pulmonary fibrosis a place to forge personal connections, to support each other and to share their experiences managing their disease. Each month we have a speaker on a topic relevant to pulmonary fibrosis with goal to provide information about important medical issues, as well as issues shaping patients’ quality of life. The remainder of the meeting is a time to connect with, and ask questions of, others living with the disease. These meetings are open to patients from any care center, and are accessible through web audio and video cast. Slide decks from speaker presentations and handouts are then available on our website for remote review. Patient-generated comments are shared through our support group active email campaigns.
If you are intersted in starting a support group in your local area, please submit the form below, and we will collaborate with you on creating it.