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COVID-19

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FDA Approved Vaccines

In December 2020, the FDA approved the use of Pfizer-BioNTech and Moderna COVID-19 vaccines under Emergency Use Authorizations. The platform that these vaccines use is a messenger RNA platform.

COVID-19

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A Primer on Vaccines

How can scientists create a vaccine that is enough like the active pathogen to prompt the immune system to make protective response without actually causing illness? Different vaccine platforms meet this challenge.

COVID-19

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A Primer on Immunology

News articles about COVID-19 include technical terms, such as antigens, cytokine storm, and neutralizing antibodies. A basic understanding of the immune system is now essential to navigating through the pandemic.

A Personal Perspective

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Oxygen Needs Transparency

When asked how the situation could be improved, Jamie replies, “In a word: transparency. There needs to be information on what equipment is available, how to use it, and what Medicare pays for.”

Disease Basics

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Basics of IPF

IPF is a lung disease that causes scar tissue to build up in the lungs causing symptoms, such as fatigue, breathlessness, and a dry cough. IPF is progressive, which means that it tends to get worse over time. 

IPF Clinical Trials

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Phase III Clinical Trials

Three IPF experimental drugs have entered phase 3 clinical trials: GLPG1960, PRM-151 and FG-3019. Having shown promise for IPF treatment, they are being further tested for efficacy in a larger number of patients.

Cape Cod ILD Support Group

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Support Group Information

The Cape Cod PF Support Group meetings are designed to offer support in daily life with pulmonary fibrosis and promote community ties. They are tailored to the unique needs of Cape Cod patients and caregivers. 

Boston PF Support Group

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Support Group Information

The Boston PF Support Group provides patients and caregivers living with pulmonary fibrosis of any kind a place to learn about how to live with pulmonary fibrosis and to teach each other from personal experience.

IPF Patient Journey

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Pulmonary Rehabilitation

Pulmonary rehabilitation helps people with chronic lung diseases improve their quality of life and reduce their disease symptoms. The article discusses the benefits of pulmonary rehabilitation for people with IPF. 

IPF Patient Journey

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Oxygen Therapy

People with IPF are usually told at some point in time that they qualify for supplemental oxygen therapy. The doctor will recommend starting oxygen therapy when someone’s oxygen saturation is too low.

Diagnosis and Treatment

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Disease Monitoring

A variety of tests done at the time of diagnosis are used to assess disease stage. They are repeated after certain time periods and the results can help show if a person’s disease stayed stable, or if it progressed.

Diagnosis and Treatment

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Genetics of Familial ILD

When two or more members of the same biological family are diagnosed with ILD, it is called “familial ILD.” This article explains the basics of disease genetics in familial ILD, and offers an a understanding of risk factors.

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Upcoming Events

Open Community Discussion Feb 24, 2021, 10:00AM to 11:30AM EST
They Dropped off My Oxygen Equipment. How Do I Use It? Mar 04, 2021, 10:00AM to 11:30AM EST
Overview of the Diagnostic Process for ILDs Mar 10, 2021, 9:00AM to 10:00AM EST
Portable Oxygen Concentrators. Can We Talk About Them? Mar 18, 2021, 10:00AM to 11:30AM EST
Immunogenetic Diversity Mar 24, 2021, 10:00AM to 11:30AM EST
+ See All

COVID-19 News

Can COVID Vaccines Stop Transmission? Scientists Race to Find Answers
Friday, February 19, 2021
Vitamin D Not Effective in Moderate to Severe COVID, Study Finds
Thursday, February 18, 2021
Caregivers Are Missing From the Long COVID Conversation
Thursday, February 18, 2021
The Myth of ‘Good’ and ‘Bad’ COVID Vaccines: Why False Perceptions Overlook Facts
Wednesday, February 17, 2021
COVID Vaccines and Safety: What the Research Says
Tuesday, February 16, 2021
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