Idiopathic Pulmonary Fibrosis
IPF is a lung disease that causes scar tissue to build up in the lungs. This causes symptoms, such as fatigue, breathlessness, and a dry cough. IPF is progressive, which means that it tends to get worse over time.
IPF Clinical Trials
Three IPF experimental drugs have entered phase 3 clinical trials: GLPG1960, PRM-151 and FG-3019. Having shown promise for IPF treatment, they are now being further tested for safety and efficacy in a larger number of patients.
Cape Cod PF Support Group
The Cape Cod PF Support Group meetings are designed to offer support in daily life with pulmonary fibrosis and promote community ties. They are tailored to the unique needs of Cape Cod patients and caregivers.
Boston PF Support Group
The Boston PF Support Group provides patients and caregivers living with pulmonary fibrosis of any kind a place to learn about how to live with pulmonary fibrosis and to teach each other from personal experience.
IPF Patient Journey
Pulmonary rehabilitation helps people with chronic lung diseases improve their quality of life and reduce their disease symptoms. The article discusses the benefits of pulmonary rehabilitation for people with IPF.
IPF Patient Journey
People with IPF are usually told at some point in time that they qualify for supplemental oxygen therapy. The doctor will recommend starting oxygen therapy when someone’s oxygen saturation is too low.
Diagnosis and Treatment
A variety of tests done at the time of diagnosis are used to monitor disease progression in IPF. They are repeated after certain time periods and the results can help show if a person’s disease stayed stable during that time, or if it progressed.
A Personal Perspective
For Judy, the wait for a new pair of lungs has begun. Due to progression of the disease, she is now on the active transplant list. Fortunately, her daughter Chloe is at her side, acting as her main caregiver and support.