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COVID-19

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A Primer on Immunology

News articles about COVID-19 include technical terms, such as antigens, cytokine storm, and neutralizing antibodies. A basic understanding of the immune system is now essential to navigating through the pandemic.

COVID-19

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A Primer on Vaccines

How can scientists create a vaccine that is enough like the active pathogen to prompt the immune system to make protective response without actually causing illness? Different vaccine platforms meet this challenge.

A Personal Perspective

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Lung Transplant Evaluation

When her breathing worsened, Judy’s pulmonologist urged her to consider transplant and be evaluated sooner rather than later. Lung transplant offers patients with end-stage disease hope of a meaningful extension of their lives.

A Personal Perspective

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Oxygen Needs Transparency

When asked how the situation could be improved, Jamie replies, “In a word: transparency. There needs to be information on what equipment is available, how to use it, and what Medicare pays for.”

Disease Basics

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Basics of IPF

IPF is a lung disease that causes scar tissue to build up in the lungs causing symptoms, such as fatigue, breathlessness, and a dry cough. IPF is progressive, which means that it tends to get worse over time. 

IPF Clinical Trials

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Phase III Clinical Trials

Three IPF experimental drugs have entered phase 3 clinical trials: Pentraxin-2 and Pamrevlumab. Having shown promise for IPF treatment, they are being further tested for efficacy in a larger number of patients.

Cape Cod ILD Support Group

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Support Group Information

The Cape Cod PF Support Group meetings are designed to offer support in daily life with pulmonary fibrosis and promote community ties. They are tailored to the unique needs of Cape Cod patients and caregivers. 

Boston PF Support Group

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Support Group Information

The Boston PF Support Group provides patients and caregivers living with pulmonary fibrosis of any kind a place to learn about how to live with pulmonary fibrosis and to teach each other from personal experience.

IPF Patient Journey

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Pulmonary Rehabilitation

Pulmonary rehabilitation helps people with chronic lung diseases improve their quality of life and reduce their disease symptoms. The article discusses the benefits of pulmonary rehabilitation for people with IPF. 

IPF Patient Journey

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Oxygen Therapy

People with IPF are usually told at some point in time that they qualify for supplemental oxygen therapy. The doctor will recommend starting oxygen therapy when someone’s oxygen saturation is too low.

Diagnosis and Treatment

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Disease Monitoring

A variety of tests done at the time of diagnosis are used to assess disease stage. They are repeated after certain time periods and the results can help show if a person’s disease stayed stable, or if it progressed.

Diagnosis and Treatment

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Genetics of Familial ILD

When two or more members of the same biological family are diagnosed with ILD, it is called “familial ILD.” This article explains the basics of disease genetics in familial ILD, and offers an a understanding of risk factors.

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Upcoming Events

Q&A on Supplemental Oxygen Jul 05, 2022, 11:00AM to 12:00PM EST
Quality of Life and Interstitial Lung Disease Jul 21, 2022, 11:00AM to 12:30PM EST
Lung Transplantation Education Series Aug 04, 2022, 11:00AM to 12:00PM EST
Anesthesia for People With Interstitial Lung Disease Aug 18, 2022, 11:00AM to 12:00PM EST
The 8 Ways of Tai Chi Sep 15, 2022, 11:00AM to 12:00PM EST
+ See All

COVID-19 News

FDA Advisers Call For Omicron Update for COVID Boosters
Tuesday, June 28, 2022
How Common Is Long COVID? Why Studies Give Different Answers
Monday, June 20, 2022
Omicron Less Likely to Lead to Long COVID, Study Finds
Friday, June 17, 2022
Pfizer’s Paxlovid Study Fails to Answer Key Questions Over Benefit for Broader Populations
Tuesday, June 14, 2022
COVID and Smell Loss: Answers Begin to Emerge
Thursday, June 9, 2022
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