A Personal Perspective
When her breathing worsened, Judy’s pulmonologist urged her to consider transplant and be evaluated sooner rather than later. Lung transplant offers patients with end-stage disease hope of a meaningful extension of their lives.
A Personal Perspective
When doctors diagnosed Mariann Rosa with IPF, the disease was completely unknown to her and her family. But Lindsay, her only child, made it her mission to learn all she could about the condition and to support her mother in every way possible.
Cape Cod PF Support Group
The Cape Cod PF Support Group meetings are designed to offer support in daily life with pulmonary fibrosis and promote community ties. They are tailored to the unique needs of Cape Cod patients and caregivers.
Boston PF Support Group
The Boston PF Support Group provides patients and caregivers living with pulmonary fibrosis of any kind a place to learn about how to live with pulmonary fibrosis, and an opportunity to teach each other from personal experience.
Idiopathic Pulmonary Fibrosis
IPF is a lung disease that causes scar tissue to build up in the lungs. This causes symptoms, such as fatigue, breathlessness, and a dry cough. IPF is progressive, which means that it tends to get worse over time.
IPF Clinical Trials
Three IPF experimental drugs have entered phase 3 clinical trials: GLPG1960, PRM-151 and FG-3019. Having shown promise for IPF treatment, they are now being further tested for safety and efficacy in a larger number of patients.