A Personal Perspective
When asked how the situation could be improved, Jamie replies, “In a word: transparency. There needs to be information on what equipment is available, how to use it, and what Medicare pays for.”
The CIDRAP Viewpoint
A “smart testing” approach would help ensure that the right test is given to the right person at the right time, with test results provided in a timely manner to allow for actions that minimize illness and deaths.
Disease Basics
IPF is a lung disease that causes scar tissue to build up in the lungs causing symptoms, such as fatigue, breathlessness, and a dry cough. IPF is progressive, which means that it tends to get worse over time.
IPF Clinical Trials
Three IPF experimental drugs have entered phase 3 clinical trials: GLPG1960, PRM-151 and FG-3019. Having shown promise for IPF treatment, they are being further tested for efficacy in a larger number of patients.
Cape Cod ILD Support Group
The Cape Cod PF Support Group meetings are designed to offer support in daily life with pulmonary fibrosis and promote community ties. They are tailored to the unique needs of Cape Cod patients and caregivers.
Boston PF Support Group
The Boston PF Support Group provides patients and caregivers living with pulmonary fibrosis of any kind a place to learn about how to live with pulmonary fibrosis and to teach each other from personal experience.
IPF Patient Journey
Pulmonary rehabilitation helps people with chronic lung diseases improve their quality of life and reduce their disease symptoms. The article discusses the benefits of pulmonary rehabilitation for people with IPF.
IPF Patient Journey
People with IPF are usually told at some point in time that they qualify for supplemental oxygen therapy. The doctor will recommend starting oxygen therapy when someone’s oxygen saturation is too low.
Diagnosis and Treatment
A variety of tests done at the time of diagnosis are used to assess disease stage. They are repeated after certain time periods and the results can help show if a person’s disease stayed stable, or if it progressed.
Diagnosis and Treatment
When two or more members of the same biological family are diagnosed with ILD, it is called “familial ILD.” This article explains the basics of disease genetics in familial ILD, and offers an a understanding of risk factors.