Welcome to the ILD Collaborative blog. The blog is organized in three themes.

  1. Articles that describe original research and initiatives the ILD Collaborative is engaged in.
  2. Patient and caregiver stories on the experiences and life with ILDs.
  3. Interviews with clinicians and providers on clinical topics of patient care, and with physician scientists on their research.

Trust and Trustworthiness in Clinical Care and Research

Jun 24, 2019
The healthcare system was foreign to me until I entered into my 30s. I had periodic visits for checkups and minor indications, always with an eagerness to keep the visits as short as possible. The encounters were not memorable, perhaps appropriately so. I believed that while doctors knew about disease, I knew better about health and wellness. Things have changed over the past 10 years.

Sharing Her Mother’s IPF Journey

Jun 03, 2019
When doctors diagnosed 63-year-old Mariann Rosa with idiopathic pulmonary fibrosis, the lung disease was completely unknown to her and her family. But Lindsay, her daughter and only child, made it her mission to learn all she could about the lung-scarring condition and to support her mother in every way possible.

Airway Clearance: Interview with Jessica Garton, DPT, OCS, CLT

May 13, 2019
Airway clearance techniques loosen thick, sticky mucus so it can be cleared from the lungs by coughing or huffing. In this interview, Jessica Garton, DPT, explains what mucus is, how it is naturally cleared from the lungs, and how to use airway clearance techniques to aid with mucus clearance when having an interstitial lung disease.

A Personal Perspective: Lung Transplant Evaluation

Apr 01, 2019
After being diagnosed with idiopathic pulmonary fibrosis, Judy Amendola learned that the average time of survival was three to five years. But, luckily, she’s beaten the odds. “I happen to have a longer trajectory and have surpassed the five years,” she says. “But things are coming to a head.”