Blog

Welcome to the ILD Collaborative blog. The blog is organized in four themes.

Articles that describe original research and initiatives the ILD Collaborative is engaged in.
Reflections from our monthly Newsletter.
Patient and caregiver stories on the experiences and life with ILDs.
Interviews with clinicians and providers on clinical topics of patient care, and with physician scientists on their research.

Studying the Effects of Anti-fibrotic Medications on Lung Transplant Outcomes

Apr 22, 2019

Could medications designed to slow the rate of lung damage for patients with idiopathic pulmonary fibrosis interfere with healing from lung transplant surgery? Should these anti-fibrotic medications be stopped during the period immediately prior to transplant and if so, when?

Lung Transplant Evaluation

Apr 01, 2019

After being diagnosed with idiopathic pulmonary fibrosis, Judy Amendola learned that the average time of survival was three to five years. But, luckily, she’s beaten the odds. “I happen to have a longer trajectory and have surpassed the five years,” she says. “But things are coming to a head.”

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