Aliaa Barakat PhD's blog

Lung Transplant Evaluation

Apr 01, 2019
After being diagnosed with idiopathic pulmonary fibrosis, Judy Amendola learned that the average time of survival was three to five years. But, luckily, she’s beaten the odds. “I happen to have a longer trajectory and have surpassed the five years,” she says. “But things are coming to a head.”

Airway Clearance: Interview with Jessica Garton, DPT, OCS, CLT

May 13, 2019
Airway clearance techniques loosen thick, sticky mucus so it can be cleared from the lungs by coughing or huffing. In this interview, Jessica Garton, DPT, explains what mucus is, how it is naturally cleared from the lungs, and how to use airway clearance techniques to aid with mucus clearance when having an interstitial lung disease.

Sharing Her Mother’s IPF Journey

Jun 03, 2019
When doctors diagnosed 63-year-old Mariann Rosa with idiopathic pulmonary fibrosis, the lung disease was completely unknown to her and her family. But Lindsay, her daughter and only child, made it her mission to learn all she could about the lung-scarring condition and to support her mother in every way possible.

Trust and Trustworthiness in Clinical Care and Research

Jun 24, 2019
The healthcare system was foreign to me until I entered into my 30s. I had periodic visits for checkups and minor indications, always with an eagerness to keep the visits as short as possible. The encounters were not memorable, perhaps appropriately so. I believed that while doctors knew about disease, I knew better about health and wellness. Things have changed over the past 10 years.

Embracing the Uncertainty, Embracing One Another

Oct 07, 2019
For Judy Amendola, the wait for a new pair of lungs has begun. After a long struggle deciding whether or not to have a lung transplant, she realized the potential benefits of replacing her lungs, scarred by pulmonary fibrosis, outweighed the risks. Due to progression of the disease, she is now on the active transplant list, awaiting donated lungs. Fortunately, her daughter Chloe is at her side, acting as her main caregiver and support.

Reflections on Hope

Dec 12, 2019
How natural is it to think and plan in terms of probabilities? Is it scientific not to be certain? In its broadest meaning, science is a human attitude, one of objectivity, of accepting reality as it is, and not as we wish it to be.

Face to Face

Jan 27, 2020
Why do we make the effort to meet face-to-face in our support groups? There is good information to learn and to share. But that’s not all.

Supplemental Oxygen: A Medical Necessity, Commoditized

Mar 02, 2020
This past July, after being treated for chronic obstructive pulmonary disease (COPD) for more than 30 years, Jamie Rice was prescribed oxygen therapy. Adjusting to the idea of being tethered to oxygen equipment was hard for her. But dealing with oxygen suppliers made it even more of a challenge.

Need for Certainty

Mar 16, 2020
The need for certainty guides much of human behavior and is one of the psychological reasons for belief in idols, political leaders, and computer predictions.